Scattered words and empty thoughts
seem to pour from my heart
I've never felt so torn before
seems I don't know where to start
but it's now that I feel Your grace falls like rain
from every fingertip, washing away my pain
I still believe in Your faithfulness
I still believe in Your truth
I still believe in Your holy word
even when I don't see, I still believe -I still believe Jeremy Camp
I don’t know if you know that song or if you’ve heard of Jeremy Camp. That song at this point in time is eighteen years old, so having never heard it is completely understandable. I would encourage you to check the song out in it its entirety and the rest of Jeremy Camp’s discography out when you get the chance.
Those words resonated with me in a way three years after it released that I never would have expected. The song was written in response to Jeremy losing his wife at age 21 to Ovarian cancer after just over 3 months of marriage. I have never been married so that pain isn’t one that I can relate with him on. For me it looked quite different. Before I dive into what exactly that is let me ask you a question. Does your life now look like you imagined it would when you were younger?
When you’re young you get told you can be anything you want when you grow up. We live in a world that tells us we can have anything we want and if we don’t we either aren’t working hard enough, or we don’t want it enough. The problem with this mindset is it’s not true. I’m 5’5” I could have wanted all my life to grow up and play as a guard for the Chicago Bulls (Michael Jordan was a big deal when I was in Elementary School) but physically and talent wise that was never going to happen.
But what if God says no?
What if what you want in life as a child, or a teenager, or as an adult isn’t what God has planned for your life? What then? We are conditioned to dream big dreams and told that if our dreams don’t scare us they aren’t big enough. But what if God has called you to something ordinary? What if you didn’t have some big dream of doing great things but God still has you in a place you really weren’t planning on being? Is there something wrong with you if God puts you in a situation where you work a 9-5 job five days a week? I don’t think so. I don’t think we can measure our faith by whether or not our lives are making massive impacts on the world. Ever thrown a rock in the water and watch it ripple out? Our lives impact people in ways we can’t understand this side of Heaven and often we don’t even know we are doing it. Those moments that seem insignificant as you say hello to a stranger, or just check in on a friend they matter. You might not be touching the lives of hundreds of people but, you are touching the lives of one person. I think we get lost and confuse real faith with people who God uses in ways that we measure by numbers and forget that God isn’t asking for you to do big things, he just asks us to be obedient. Often that obedience doesn’t look anything like we expected it to.
Obedience for some might look like a grand plan that culminates in providing clean water for people in impoverished countries. For others it just looks like having conversations with people across the street and sharing Jesus. I don’t know what that obedience looks like for you. Me, well that obedience looks like living a life I never imagined. Certainly not one I would have chosen for myself.
I told you that those lyrics resonated with me so let me explain why. I’ve got a genetic condition called Kallman’s syndrome. It’s a hormone disorder that in simple terms means that the part of my brain that makes hormones the hypothalamus doesn’t work. It’s not a common condition statistically speaking there are only five other males in Chattanooga that have it. I can tell you I’ve never met them if they are out there. I was diagnosed with it on October 13,2005. I was fifteen and after not starting puberty and not really growing I was tested and that was discovered. Knowing what I know now there were signs that I didn’t realize were there, chief among them hyposmia which is a diminished sense of smell. Basically, if it isn’t food I can’t smell it and even then, I don’t smell much. As a result of this I also discovered my bones on an X-ray were several years younger than my chronological age. I don’t know if that is worth much, but it sounds kind of cool and makes me feel a little like Wolverine.
To counteract my broken brain, I get testosterone injections every other week, so my body can function as it should. When my levels get low I get incredibly tired and lose my appetite. There really isn’t a single part of me that hasn’t been touched by the lack of hormones for so long. I’m thankfully not afraid of needles. I get bloodwork done once a year to make sure I’m getting the proper amount and to measure a few other things and I’m the weirdo that sits and watches those little tubes fill up.
Now, lack of smell is a bummer (most of the time), getting shots which is habitual at this point still isn’t fun, but I could have lived with that my whole life and been fine. Unfortunately for me I was about to find out just how wrong ‘you can be anything you want to be when you grow up' was. January 27th I was back at the doctor for a checkup to see how the testosterone was working out and all that fun medical stuff. I know those dates because my sixteenth birthday was January 20thand it was after that. That was when I found out just what Kallman’s was going to mean for me for the rest of my life. More than shots, and lack of smell, and a small stature. That day I was informed that because of Kallman’s syndrome I would never have biological children. Just like it didn’t produce testosterone, my Hypothalamus also doesn’t produce Luteinizing Hormone which is needed for that process.
Ive got a strong memory. Unfortunately I don’t get to control what I remember. I can tell you that the floor looked like tooti-fruiti jelly beans a weird tannish pink with spots of green, yellow, red, and blue. I can tell you the walls were a funny color green. My father was wearing a seafoam green Carhartt shirt, blue jeans, and his asolo brand boots. I don’t think that the exam room table sterile paper that makes so much noise that everyone in their grandmother can hear you move on it was ever quieter than in those minutes. That was a moment I won’t ever forget. As a writer I tend to focus on details and those details are etched forever into my memory.
See, from the time I was eight years old the one thing I wanted to do when I grew up was to be a father. I wanted kids of my own. Before all of this I would have told you, I’d be married by twenty and have three or four kids by the time I was thirty. That was my plan. I mean none of those things are dishonoring to God. It was, I thought, a normal life that wasn’t asking for much. I wasn’t after all out here praying for God to give me a mansion or a few million dollars. I just wanted a wife and kids. Again, not a crazy ask, relatively speaking it was pretty much the same life the majority of America lived. But God said no.
Sitting in that room I’d never felt so alone in my life. I’ve given you that statistics this isn’t common, and my father was in the room with me but right then and there I was the only person in the world and God had just destroyed the only dream I’d had for basically as long as I could remember. That hurt. That made me angry. It is truly hard to describe the emotions sitting there at sixteen and hearing all of this from a doctor who delivered this news like he was telling me the time of day. Then I got to the processing stage, eventually. For me that looked a lot like the five stages of grief, denial, anger, all those things. Confusion isn’t one of those stages, but I think it should be, at least, for me it was where I was for a long time.
Nowadays amongst my best friends and people who know me well I’m known for praying for them. You come to my mind I’m going to pray for you and then I’m going to text you, so you know I’m thinking about you. Back then that couldn’t have been said of me. I wasn’t praying for anyone that wasn’t me and even that wasn’t happening often. When it did it usually was just grief and anger that culminated in prayers like Why can’t I have kids? What did I do wrong? God please just fix me. You don’t have to change anything else just let me have kids. People all over the world that don’t want kids are having them and killing them. I want them, why did you say no.
There are still days I ask those questions in prayer. Not in the angry and hurt words of a confused teenager but in the quiet seeking of a man who wants to see this pain glorify God in some way, so I know what the point of it all is. Again, statistically speaking it isn’t probable I will meet someone like me where I can share this story and they can understand and be helped. I do however refuse to believe that it was meaningless, I just haven’t quite seen the meaning behind it yet.
At sixteen I found this out. One year later I started working with kids at my church’s Mother’s Day Out Program. Now you might be reading this and thinking why in the world would you work with kids? I’ve been around kids my whole life. Dealing with children comes naturally to me. My official title changed over the thirteen years I taught there but when I started I had a lot of free time. If I wasn’t being chased on the playground or by tricycle riding kids I was usually in the nursery holding and feeding babies. Which at the time wasn’t in my job description and wasn’t at any point, but you know, I had to do something when kids were in classrooms and that room wasn’t mine. For me those stolen moments were like tiny treasures because I got to experience things I quite likely won’t experience. Strange as it sounds I believe this was God’s way of helping me deal with everything. From an outsider’s perspective being around kids, especially babies, when I’d been told I couldn’t have my own would be a horrible place to be. For me it was the best place to be. It wasn’t always easy. The days were hardest when it was a dad who brought children in, mothers never bothered me. Quite frankly there are still times I get caught off guard when I see a man with kids, especially a baby and I have to fight back that envy and remind myself that God knows what he’s doing even when I don’t understand that plan.
There was no set time for that understanding. I didn’t just wake up one day and decide to be alright with how life has turned out. It was very much a slow process of little by little being reminded of God’s faithfulness. That process was certainly helped along with this song. When you listen to the whole thing you see the journey of faith that Jeremy goes on from when words don’t come and he’s hurt and confused to reminding himself that God is still God, He is holy and faithful and circumstances don’t change that, to in the end realizing that despite all of the pain God wasn’t surprised by what happened he’d designed Jeremy’s life for this. It sounds odd I know but his journey helped me despite experiencing different things. His pain helped remind me that despite not understanding anything God was doing that God was still faithful. My pain and confusion didn’t change who God was or is.
This isn’t me saying that I have everything together at thirty-one. I definitely do not. I still haven’t seen how what I’ve gone through will impact anyone in the way I assumed it would be beneficial. Infertility isn’t uncommon, but it also isn’t something most talk about and its definitely not seen as a men’s issue. Ever wonder why people ask women when they will have children, but people don’t ask men that? One of the things that I see as a sort of double-sided coin is my age when I found all of this out. I wasn’t married then. There was no one to really discuss this with. I’ve got four siblings and none of them have this. In fact, to my knowledge no one in my family has ever had Kallman’s. On one hand I think it would have been easier to deal with it if I’d found out after I was married. On the other I think it was easier because it was just me. If the time comes that I find a woman to spend my life with this won’t be that gut punch that it was then.
What this is though is me telling you that God is faithful. I have no idea what you are going through. Maybe right now life is good. If so, great. If it isn’t, I hope I can help show you that God is good even when it feels like your world has been turned on its head and how you thought life was going to be isn’t how things are turning out. We might not know what He’s doing but we can be sure that He is working. Always for our good even when it feels like anything but good.
I never would have imagined at sixteen the things God was going to change in me because of this. My heart was open to the world of adoption and orphan care to a degree I wouldn’t have thought of then. I’ve met multiple families whom have adopted children over the past several years. What was once simply a ‘cool’ thing in my head has become a desire within me to do it myself. I wrote a book eight years ago on the premise of orphans that has since been used to help fund adoptions for families I will never meet from all over. My family is well aware of this desire and also that the chances are if it happens, my children will not in the slightest resemble the rest of our family, they will likely come from other nations and countries.
It might not be easy to see in the moment, it wasn’t for me, but God doesn’t waste hurt. He doesn’t waste pain. I don’t know what that looks like for you or even if you’ve had a time in your life that it feels like God isn’t anywhere near you. I can tell you from personal experience that when that time comes He’s right there. He hasn’t gone anywhere. That hurt might make Him hard to feel but believe me, He’s still in control, still loving you, and still faithful.
